Timothy Haylon Obituary

Timothy D. Haylon, 62, passed away on September 28, 2023 surrounded by his loving family, after a long battle with Myotonic Dystrophy. Tim was the son of Cécile Haylon Baker and the late William Haylon. He leaves his loving wife of 35 years Patricia (Gibbons) Haylon, and three devoted children: Thomas F. Haylon, Anne-Marie H. Hahn (William), and Mary-Kate C. Schaper (John). In addition to his mother, he leaves his siblings Michael Haylon (Carol), Richard Haylon (Paget), and Marilé Borden (David), sister-in-law Polly Haylon, and a large extended family of aunts, nieces, nephews, cousins, in-laws, and friends. Tim was predeceased by his father, stepfather, James Baker, and siblings Denise O'Neal and William Haylon Jr., as well as his parents-in-law, Patricia and William Gibbons.

Tim grew up in Saint Louis, MO, and West Hartford, CT, where he attended William H. Hall High School. There, Tim developed qualities that sustained him throughout his life: an uncompromising work ethic, tenacious determination, and steadfast loyalty to his many friends. After receiving his undergraduate degree at Hobart College, Tim earned two master's degrees at Assumption College, and worked for more than 25 years as a social worker helping troubled youth throughout New England.

A man of many talents, Tim was a mentor, entrepreneur, coach, poet, and more. He enjoyed family game nights, watching the Fighting Irish, and spending time in Newport, RI and Rye, NH, but was most often found helping a friend or family member to maintain and care for their home. He was always happiest when his hands were busy.

Later in his life, Myotonic Dystrophy took away Tim's ability to use his hands the way he loved, but that didn't stop him from being a "helper." He became a fierce advocate for those suffering from the disease that shaped his life, generating awareness, facilitating support groups, and raising funds. In 2019, Tim testified before Congress on behalf of the Myotonic Dystrophy Foundation, helping secure millions in funding for research. He received an award from the foundation for his advocacy. Tim later became a spokesperson for Dyne Therapeutics, a leading pharmaceutical firm working to develop a cure. Upon his death, he donated tissue to Stanford University to aid in Myotonic Dystrophy research.

Among his many accomplishments and accolades, nothing made Tim prouder than his role as a husband and father. He found great joy in celebrating the achievements and milestones of his children, who will greatly miss his guidance and support. He will be remembered for his unwavering dedication to his family, his commitment to helping others, and his resolve and indomitable spirit in the face of tremendous challenge.

Calling hours will be Tuesday, October 3 from 5:00 to 8:00 pm at O'CONNOR BROTHERS FUNERAL HOME, 592 Park Avenue, Worcester. The funeral Mass is Wednesday, October 4 at 11:00 am at Christ the King Church, 1052 Pleasant Street, Worcester. Burial will be private at a later date.

In lieu of flowers, please consider contributing to the Myotonic Dystrophy Foundation. oconnorbrothers.com